This page has been automatically translated. Please refer to the page in French if needed.
Let's Alliance for Rare Diseases
february 28: it's world rare disease day
Publié le null - Directorate for Legal and Administrative Information (Prime Minister)
Let's Alliance for Rare Diseases: #YESWENAME
What is a rare disease?
In France, a disease is called rare
Given the small number of cases in each of them and their great diversity, the clinical diagnosis of these diseases is often complex and the management difficult. Medical and scientific research is essential. Indeed, many of these conditions are also called orphans
Why a rare disease day?
The main objective of the Rare Disease Day is to improve the general public's knowledge of these diseases and their impact on patients' lives. It also aims to raise awareness among policymakers, governments, industry representatives, researchers and health professionals of the challenges they face in better managing patients.
FYI
Created in 2008 at the initiative of the European Organization for Rare Diseases (Eurordis), a federation of associations of patients and individuals active in the field, this European day has become international. For its 2021 edition, it brings together 103 countries where many virtual events are organized (conferences, social media campaign, round tables, webinars...).
On Sunday, February 28, 2021, several monuments in the region will be illuminated in the colors of the international day: Bordeaux, Clermont-Ferrand, Dijon, La Baule, Lille, Nice, Orléans, Rennes, Rouen, Strasbourg, Toulouse.
Additional topics
Ministry of Health
Alliance of Rare Diseases
World Rare Disease Day
Agenda
Examens scolaires
À partir du 8 juil. 2024
Publié le 08 juillet 2024
Aide au logement
À partir du 8 juil. 2024
Publié le 24 juin 2024
Plateforme Mon Master
Du 4 juin au 31 juil. 2024
Publié le 06 juin 2024